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Read conversations, start a discussion, and connect with others about epilepsy.

Summer with Epilepsy

Which aspect of summer most impacts your epilepsy management?...

How has epilepsy impacted your mental health?

May is Mental Health Awareness Month. And we know that one of epilepsy’s most common complications is issues with mental health. 💜...

EEG In hospital for one week

Has anyone tried EEG in hospital, For a week to locate exactly where your seizures Are located, and what medicines to take...

Psilocybin and Epilepsy

**Initial disclaimer** This topic is not meant to support or encourage the intake or abuse of illicit substances. Always consult your medical...

Diagnosed

I was diagnosed when I was 2 yrs old. Mom noticed me sitting on the steps instead of going up them. Asked...

Clobazam sent my hair curly like a corkscrew

There seemed to be absolutely no explanation for this whatsoever. Clobazam was added to a number of different medications I was already...

Juvenile absence epilepsy

Hello. My son was diagnosed early 2024 with JAE, he is on lamotrigine twice daily and has managed it well. With brief...

Diagnostic telemetry

Hi everyone, wish me luck for Monday 7th July please. I'm off to hospital for another round of telemetry, 5 days this...

Fever-Triggered Epilepsy

Do you have fever-triggered epilepsy? What do you do to overcome it?...

Neurologist

I have this neurologist and she is rubbish 5 years ago she overdose me with topimate to the point where I had...

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